Our little guy is 7 pounds, 0 ounces today.
Today was Alexander's first visit to the pediatrician's after discharge
and it came after a night with some seizures. So up goes the
phenobarbital a bit (which is better than the offer of a readmission
that was given earlier).
Our little guy is 6 pounds, 12 ounces today.
Five days after being born and both Mommy and Alexander are coming home
today! Hooray...no more hospitals for us! (consider that this is being
written on 16 Mar 2005...ha ha! -- Ed.)
Springing him from WakeMed was a little more exciting than we planned...
and there was more than a little hurry up and wait. So after an
hour or so after we're notified that he's getting booted out the door
and the paperwork is done, we're ready to go.
Except that his circumcision required him to actually take a pee before
they'd let him go. Aaaaaggggggghhhhhh...this is so darned excruciating...
we are so ready to blow this joint!
So Mommy does the only logical thing to do...she orders Alexander to
take a pee and be quick about it. Not one minute after the nurse who
dropped the youse gotta pee requirement went elsewhere, he obeys
the orders in Bristol fashion. All over Mommy, in fact! But that's
enough to satisfy the nurse and Alexander is on his way home. He looked
so tiny in that car seat (so did Nicholas but he was two pounds lighter
at birth!).
But yeah, he's a keeper. :)
Alexander had his MRI today and it revealed that he had a small bleed in
the right frontal lobe of his brain approximately two or three days ago
(based on the observation that the blood that was found was old blood
which indicates that whatever vessel popped, it's already been repaired
which was a good sign. The age of the blood indicates that it happened
either right before delivery or during the delivery. The good news
(if you can imagine it) is that it was definitely a small bleed and not
a stroke...if you have something like this going on, you definitely want
the former.
They're not really sure what caused this...theories include abnormal
vessels in the brain that popped due to the pressure of pregancy as
the most likely. But they are saying that if you're going to have a
complication such as this, his age and the location of the bleed combine
to make it so that a child up to three years old has a much better chance
of recovering from an injury such as this than an adult would.
Unfortunately, the brain doesn't take kindly to blood just sitting on
it, blood is irritating to the brain and thus you tend to see seizure
activity.
But now that we know what caused his seizures and that it's pretty much
repaired itself, the question is now what can we expect and the answer
is a pretty big we don't know as of yet. If there is going to be
any long-term problems from the bleed in that particular area, it's
expected to manifest itself as difficulties with attention, focus, and
and behavior. There aren't any expectations that actual cognition /
intelligence will be affected. Another MRI will be taken probably in about two or three
months once the swelling has gone down in his brain and that'll shed a
lot more light on what we can expect going forward. And there is a fair chance that
Alexander might not suffer any ill effects at all. But he will be
watched very closely to see if there are any additional seizures (which
is complicated by the fact that the manifestation may well change over
time from what he was doing as new pathways are formed). He'll probably
be on the phenobarb for four to six months and then be allowed
to outgrow it or if there are additional difficulties, he will be
switched to some other medication if necessary (as it was explained to
us, phenobarb is wonderful for little ones up to six months...after
that, it tends to mess with cognition).
To sum up: for a sucky situation, this was the best possible news
we could hope for!
He's getting excellent care from some of the best pediatric neurologists
in the business and now that we know what to watch for, whatever follow-on
effects come of this are treatable with available therapies so there is
no reason Alexander can't have a happy and healthy life. We'll just be
better prepared to watch for and correct any problems that we see with
his development and that's not necessarily a bad thing.
Unfortunately, this means that like his older brother, we won't be
bringing him home when Mommy comes home. But it's better to make sure
that we've really passed the acute phase so that he doesn't have to make
a U-turn right back into NICU even though emotionally, we'd rather have
him come home straightaway.
Thanks for the continued good wishes for his well-being...they were very
much appreciated, particularly for the last 48 hours! :)
Just when you thought you might finally have something go normally without
complications, of course that's the time that you get the news of
complications.
He was irritable yesterday evening (if I had just gotten shoved
out of a small birth canal into a bright and cold world, I'd be a bit
irritable as well. Unfortunately, Mommy noticed that it had progressed
from irritable and prickly (which you'd expect after the day he had!)
into actual seizures.
Those aren't normal, guys!
It took a fair amount of pushing by Mommy to finally get them to realize
that she knew what she was seeing (you'd think she'd get a pass on that
as she works pediatrics ED at the WakeMed facility and probably sees
enough of this!). But thanks to her being persistent and keeping her
cool under very trying and emotional circumstances, Alexander followed
his older brother over to the redesigned
NICU unit for more intense scrutiny to discern the cause. Several labs
were drawn to check for infection but those were very quickly ruled out.
They wired a bunch of leads to his head (it almost looked like something
from an old B-grade science fiction movie when the mad scientist hooks
up the poor victim to a really bad machine to suck out their
brains or something). These leads were for the EEG which did confirm the
seizures (some of which were pretty obvious to the eye when you knew
what to look for and how it would manifest).
Next up is an MRI to see if they can pinpoint what's going on and that's
likely going tomorrow (it seems to be localized on the right side of the
brain). In the mean time, he's responded well to phenobarbital or
phenobarb for short. This is billed as a wonder drug, particularly
for very young babies and it certainly has helped cut down on the
seizures as well as whacked him out for a while!
Until then, we can only hope for the best and be prepared for what news
comes our way.
Gram made a trip up from Fayetteville to get an Alexander fix this
evening...I think it's safe to say that she's on the he's awfully
cute bandwagon!).
BTW, a big shout-out to our new friends over at A4 where Daddy works
who were kind enough to send an awfully beautiful flower arrangement
which arrived at precisely the right time (read: when we were getting
the initial reports and wondering just how this was going to go with
Alexander). What a beautiful and thoughtful gift and it was very much
appreciated.
The story starts innocently enough with Mommy and Daddy playing games
upstairs last night and the universe has a sublime sense of humor
when you consider that the games were Payday and Aggravation.
You just don't tend to get enough of the former but a surplus of the
latter, particularly when you've got little ones running amok! Anywho,
Mommy started feeling a bit out of sorts but considering that Nicholas
wasn't really a normal pregnancy, we didn't really put two-and-two
together because she hadn't really felt what the onset of contractions
naturally felt like. (Mommy was rather brutal in trouncing Daddy
in the games. I'd say it was luck but in Aggravation, she
particularly laid the smack down!)
Well, by 0100, she felt something was up and by 0600, they were spacing
about five minutes apart. That's get yo bags together and start
making plans to drive time, people! Of course, getting up and about
meant that the contractions actually started spacing out to ten minutes
apart...of course after we've made calls, started the Escape to warm
her up, and sent EMAILs saying that a certain Alexander was on the way.
Our friendly consultant Dr Bass suggested Mommy rule out false labor
by chilling out for a two hours. But there were a couple of
indicators that suggested that it wasn't false labor at all.